AMA submission in response to the Data Sharing and Release Framework
The Office of the Data Commissioner (PM&C) recently released a Data Sharing and Release (Legislative Reforms) Discussion paper for public consultation.
The AMA values the importance of health research. The pursuit of research using sensitive health data, however, should not be prioritised at the expense of patient privacy. This is not to say the AMA opposes out-right the proposition in the Data Sharing and Release Legislative Reforms Discussion Paper. Rather, we consider the Sharing and Release Framework requires much more work before it provides certain and sufficient privacy protections for health data that is used for secondary purposes.
The AMA will have another opportunity to comment on this concept when draft legislation is scheduled to be released for consultation in early 2020.